French 1901 law governing associations, is the first French
association fully dedicated to Fabry disease patients.
The association regroups both patients and all persons implicated in Fabry Disease.
The 8 APMF’s missions are the following :
To inform members of the Association and patients suffering from Fabry disease on progress made in understanding the mechanism at the origin of the disease, its consequences on the organism and daily life, as well as current therapeutics or those being developed.
To bring replies to questions asked by patients, as validated by a Scientific Committee.
To create a “friendly” link between members of the Association.
To bring a listening ear to members of the Association and patients suffering from Fabry disease, enabling them to exchange information, to benefit from services destined to avoid isolation and to bring moral support.
To act as a voice addressing public authorities and social services representing persons suffering from Fabry disease in order to defend their interests.
To promote - in cooperation with the medical corps - research, be it fondamental, biological, genetic and therapeutic on Fabry Disease and inform on results.
To develop awareness of Fabry disease through media relations (TV, radio, medical journals and specialized press).
To cooperate with other patient associations, both nationally and internationally, regarding Fabry disease, lysosomal diseases or genetic diseases.